Monday, January 23, 2012

The final countdown... for now at least.

Tomorrow is our fourth and final inpatient high dose methotrexate stay at CHOP. I am so grateful for the help that we have received during these in-patient stays. I don't know how all of them would be possible without our families.

On our hospital check in day it goes something like this. 9am we drive to to our clinic about 15 minutes west of where we live. They weigh, measure height, do a BP and temp and then access Biz's port. They take a blood sample and send it to the lab for processing. It takes between 20-40 minutes to get the results. If her counts are high enough for chemo, they call down to the hospital, confirm a room, and put her into the system. We get a big white envelope with our room number on it and we load up and drive about 30 minutes east, passing our home, and going down into the city to the hospital. We have to pack the night before, and get the week ready for the other kids and Daddy.

Does anybody remember when this used to be a crafting/homemaking blog? Well I did make the baby's quilt since I have a free minute a couple of weeks ago... oh did I say 'make' a quilt? I mean finish a quilt vision with fabric purchased 2 years ago. Here are the pics. I have begun my thesis so I'm so crazy busy these days. I'll be glad to be finished with my master's so I can get more breaks for the family. I have a lot of organizing to do before we move in June. I also had a layer cake of this same fabric which I plan on using for a larger slightly less simple version of this same quilt for my other son.



1 comments:

NancyP said...

Bann - you are f*ing amazing. I am awed by what you are doing. The funny thing is that people say the same thing about me and how I am handling Doug's cancer but I don't have little kids, I have a full time job but they are very understanding, and I swear the whole cancer thing would be 1000 times worse if it were my child rather than my husband.

I do completely understand the whole "go get the blood checked, hope the levels are high enough to go and get my loved one pumped full of killer drugs" thing. It's a great day when the numbers come back in your favor. I hope they continue to.

She is such a wonderful little girl. I wish you all the best. I know that each day is completely different and unpredictable. All our love to you and your family.

xoxo
Nancy